-----Original Message-----
From: m.collins9 [mailto:m.collins9@...]
Sent: 18 July 2001 06:45
To: bibic-owner@...
Subject: Re: [bibic] fight for Tilly
From: m.collins9 [mailto:m.collins9@...]
Sent: 18 July 2001 06:45
To: bibic-owner@...
Subject: Re: [bibic] fight for Tilly
Andrea,
From your message, I see Tilly is 3 years old. How long has she been going to BIBIC? What happened in her life to make her need to go there?
I am taking my son Henry at the end of the month for the first time. He is 20 months old (22 since birth). His development slowed and then stopped in the first year of life and then he had terrible seizures - about 90 over a period of five weeks June- July last year. The seizures were Infantile spasms which appear to be a very damaging kind of seizure. A month ago he was assessed as having a linguistic age of 7 months, gross motor skills of 15 months and in other areas a developmental age of 8 months, and some sign of autistic features. It sounds absolutely terrible, but he is a lovely boy, into everything, welcomes visitors, enjoys people, is affectionate to his mum.
Margaret Collins
----- Original Message -----From: Andrea AbbottTo: bibic@...Sent: Sunday, July 15, 2001 11:43 PMSubject: [bibic] fight for TillyHello everyone, hope your all enjoying summer? heres an update about
Tilly she now walks,leaps over the furniture,sings, loves to
dance,and copies every thing i do, Iv had to fight for support to
able her to go to nursery she is in main stream nursery attached to a
primary school i have at long last won my battle with the LEA for 5
afternoon sessions, Tilly loves nursery she has made 4 really good
friends and this has speeded her devlopment but why should i have to
go through all this when a normal 3 year old is intitled to nursery
just because my child does not fit the norm does that mean she has
less rights? My next fight is for speech thearpy iv been told its not
worth giving Tilly speech thearpy why encourage her to talk when she
will never understand what shes saying!!!!!!!! my girl can find her
socks,coat.shoes etc when asked she asks for a drink she asks for
crisps & icecream you can ask her to sing a song and shel sing the
one you asked for, she can tell you when something is out of reach
how dare they say my daughter lacks any understanding, I will never
give up on my children & wont except anyone who does sorry to sound
off really mad mum Andrea p.s having alot of trouble with Ayrton &
school work
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