Howdy I'm Mike. I just got confirmation I have RP... finally. My Uncle, and great Uncle had RP. I was in first grade when I had my first eye exam. Docs just...
Hi Mile, Itoo have rp Iam61 and was told at the age of 27. It was a big shock because nobody in my family had it or had ever heard of it. Then my baby sister...
I like hearing what RPers do to help preserve what vision they have remaining. Understand your concern on giving out "false hope." What doesn't work for one...
still looking for someone to explain to me what these are and how it works/what it's supposed to be doing. . . thanks! ... [Non-text portions of this message...
Thks! Ushers can relate to this. I have to recognize that I sometimes do not follow the same news as my wife: she listen to the news and watch them while I...
I totally understand.. I like to remove teh hearing aid(s) and let my ear(s) recover at home and so I resort to reading captions on tv but not always what they...
Hello, Closed Captioned still isn't perfect. CC needs newer technology to allow us to control the way we see it. We should have the power to place the CC...
Idon't know Iwent Thrus. to be tested to see if Icould take the injections but the dr. said they would not help me ... From: Mike <spydiferous@...> ...
Why do you need steroid shots, Barb? If you don't mind my asking. It's been my understanding that RPers need to be careful with these sort of shots. Thx and...
rp causes swelling in the back of the eye in some rp patients which causes fliud leakage that can cause more sight loss. the steriods can stop it. But I didn't...
1- I am still waiting for my flashlight from FirstStreet 2- However, I ordered one of their Sunglasses called Eagle Eyes. Yellow sunglasses may look scary but...
Where did you order the eagle eyes glasses from Barb ... From: Jean-Louis Pretot <jlpretot@...> Subject: Re: [RetinitisPigmentosa] Check out Nightlighter...
The link Countess passes on for the flash light http://www.firststreetonline.com/index.jsp for boomers and beyond. Those guys are smart. Their niche is...
My last injection was in October and I have seen improvement in my vision. I have RP in my right eye only. I know there are risks involved, but, I am...
Sorry I cannot let this one pass whithout questions. I am a little surprised there. You do not know how advanced your RP is and you let the doctor make...
I went in for an eye exam. I already knew i had cataracts. After talking with dr for a while he rechecked my right eye and had questions about what he saw and...
Oh, I didn't know that; thanks for the info. Countess In a message dated 11/17/2008 4:06:55 A.M. US Mountain Standard Time, retinitispigmentosa@yahoogroups.com...
Wow, I never heard of having RP in just one eye! What type of RP is it, if you don't mind my asking? So the good eye can see in the dark with no problems?...
I love my keyboard!!! No longer have to strain to see the keys. IMO, you can go wrong in switching to this type of keyboard. Countess In a message dated...
Michelle, It is Firststreet for boomers and beyond. The ones with eagle glasses, cane (picking your keys on the floor!) and the flashlight we ordered and...
Thanks for your reply. I am sure few of us will continue asking questions. Indeed, dealing with it for 10 to 20 some years we all saw Retina specialists. In...
Hi Becki, hope you and the family are well. It's been ages since I've seen a post from ya! grin Talk to your doctor about your concern in regards to the RP...
It's called "Keys U Can See" and mine was a Christmas gift from my Mom. First Street sells it and some other low vision sites. You can google it and do a...
Steroids are not good for the eys, the bones...but one will not kill you. Marisa ... I've seen ... shot. I had ... surgery ... the eye. And ... eye! LOL ......
Mike, It is good to enjoy life, but be sensible and try to protect your eyes. Even within the same family, the pattern of RP is not consistent so there is no...
Good point Countess. Bought it from Amazon $37 incl shipping. Was 49 +9 Shipping at First. ________________________________ From: "CountessofAZ@..."...
