My hands are freezing all the time, I have scleroderma with severe rayneaud's.My Doctor prescribes Nifedipine for this, and I don't think it really helps too...
Hi Jen My doctor put me on Norvasc for the raynauds. It seems to help. My son made me a pair of fleece mittens filled with flaxseed.. I pop them in the micro...
http://health.groups.yahoo.com/group/Raynauds_Disease/ Hi people, It's so nice to see some new posts here! I am on the Raynauds group too, see link above. I...
Hi Jen, I live in Dutchess county NY, so I hear ya about the cold. My fingers were so bad last winter that I lost the tip including bone of one finger. I was...
Hi Karen, I know exactly how it feels to have cold hands. I also have Reynauds and Scleroderma. I started out at the last resort...........Surgery. My hands...
Dear Wendi, I wish I could give you a huge hug. Reading your letter I had tears in my eyes, but I also felt your strength. You are an amazing woman and have...
I was on the norvasc at first...but it almost killed me, I don't know if it was too high of a dose at first or what, but he switched to the Nifedipine. It...
Hi Karen... I guess you do have the same type of weather as me. I'm so sorry to hear about your fingertip, it is so scary to think you are losing a peice of...
Hi Karen, I live In Virginia. I know it doesn't get as cold here as in New York but it gets colder then I want it to be here. It doesn't change the fact that...
Hi everyone, In response to the cold hands issue ....you really have to keep your entire body warm. You've probably noticed that even in air conditioning, or...
thank y'all for the warm welcome. i have had the moniker moonrose for the last 12 years online. i once saw a picture of a white rose fully bloomed under the...
Hi moonrose, Never too much information! I hope you find a great doc in Kentucky. The numbness on the face is a new one, but maybe it's typical scleroderma,...
This was on another Yahoo Group and thought that i would share it..... There once was a woman who woke up one morning, looked in the mirror and noticed she had...
Karen, That was so good and so true! Attitude is everything. Carrie Karen <karensplace14@...> wrote: This was on another Yahoo Group and thought that...
I have blogged about my experience with my mom and her oncoming death. I am broken hearted I called for support from the scleroderma foundation and I was...
Saturday, November 18, 2006 R.I.P MOM Current mood: peaceful At 7Am my mom was short of breat and breathing fast as I held her hand I spoke to her telling her...
Hi April, I am so sorry for your loss. She will no longer be in pain from such a horrible disease. I know that is not much. I also have Scleroderma and...
April, I'm sorry I am behind in reading emails, and have not read any further emails to see if you have gotten any responses. Have you found assistance yet?...
Hi everyone, The groups been quiet lately. April, so sorry about all your troubles. Hopefully this too shall pass. I was int he hospital this week, receiving...
Hello, I don't post a lot but I had a question. I recently lost 17 pounds due to a different approach to this terrible disease. I have decided to try a...
For some reason i'm not recieving message from this group ever since I sent a message regarding exercise on oxygen. Does anyone know why they aren't coming to...
Hi Carmen.....as you can see, I joined the 8th of Dec and no one responded to my requests. I think this is a defunct group. Go to http://www.sclero.org and...
Thanks, yes I went ahead and quit the group. Thanks. I did join a few others. Carmen My Blog= http://goodtimesandboxedwhine.blogspot.com/ Me on :...
Carmen Manning
shugkw@...
Mar 20, 2007 1:59 am
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http://im.live.com/messenger/im/home/?source=MSGTL_APR3&cid=T001MSN33A12001 It is a new program that MSN has started just go to the link or I think you can...
HI, I tried many meds with no help. I also had two thoracic sympathectomies, one worked, one didn't. I live in upstate NY, so am cold too, and I did lose a...
